Thursday, 4 October 2012


Being a mother of two young children means being reminded of certain things is more often than not very useful.

However we are once again approaching a time when we are reminded of the fact that our littlest little man is not perfectly healthy.

Every day this week we have had a letter addressed to the 'carers of' which I always know to be medical letters before opening them.

Next week we will be returning to the place that brings all of the memories and mixed emotions  flooding back. The complete despair, heart ache and exhaustion of watching our special boy battle against so many problems. Then the elation and excitement of being able to take him home for that very first time just under a year ago.

Four months have passed since his last scan and it has once again become impossible to imagine that the doctors would say anything other than his heart is perfectly fine. They never say that and they will never be able to, it's just that to know him and to see him developing so wonderfully you would never know there was even an issue.

All we can do is hope that the doctors do not find any new problems and that they are happy with the scan results on the day.

This week I was momentarily thrust back into the world of poorly hearts when he started showing symptoms that we have been advised not to ignore under any circumstance.

Thankfully after an immediate visit to the doctor I was fairly reassured it was not his heart and actually just the first of what I'm hoping wont be too many winter bugs.

It is so important to live life as 'normally' as possible in between these brief reminders of the traumatic times last year. It wasn't easy at first but the show did go on and the little man is thriving better than any of us could have ever dreamed this time last year.

How wonderful it is to forget.

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